WHO
Community
OurBrainBank is a community of people affected by GBM supporting each other through live video chats, our Facebook page, our Facebook Group, or on Twitter and Instagram. We exchange ideas, talk about symptoms and treatments, and give — and get — support. Our YouTube channel has helpful and informative videos. We’re growing all the time, please join us.
Patient Advisors
People living with GBM work closely with us, keeping us patient-centered. To respect privacy, names are not listed, but if you’re interested in joining, please write us.
Medical and technical advisors
Fabio Iwamoto, MD, Deputy Head of Neuro-Oncology at Columbia University, Chair of OurBrainBank Medical Advisors
Marina Benaur, MD, Assistant Clinical Professor of Psychiatry, Columbia University-New York Presbyterian
E. Antonio Chiocca, MD, PhD, Harvey Cushing Professor of Neurosurgery, Harvard Medical School; Neurosurgeon-in-Chief and Chairman, Department of Neurosurgery, Brigham and Women’s Hospital
Alexis Demopoulos, MD, Neuro-oncologist, Northwell Hospital
Bruce Hellman, CEO, uMotif, developer of the OurBrainBank App
Mario Lacouture, MD, Dermatologist, Memorial Sloan Kettering
Lakshmi Nayak MD, Neuro-Oncologist, Dana-Farber Cancer Institute; Assistant Professor of Neurology, Harvard Medical School
Daniel Orringer, MD, Neuro-surgeon, NYU Langone
David A. Reardon, MD, Clinical Director, Center for Neuro-Oncology, Dana-Farber Cancer Institute; Professor of Medicine, Harvard Medical School
Joshua Silverman, MD, Radiotherapist, NYU Langone
Board
Jessica Morris, Founder (1963-2021)
Ed Pilkington, Chair, Chief reporter, The Guardian US
Kelli Duprey, Vice Chair, Senior Pharmaceutical Executive
Andi Phillips, Treasurer, CEO, Maycomb Capital
Michael J. Zaccagnino, Secretary, Founder & President, Lucania Partner
Gail Fosler, President of The GailFosler Group LLC
Rod Nordland, New York Times journalist and author. Living with GBM
Theresa Schaub, Commercial Operations Executive. Living with GBM
Claire Wright, Entrepreneur and Attorney
From participants in our pilot study:
“This is amazing!! As a caregiver for my husband — I can tell you this is much needed!!”
“I’m all for this app. Not only helpful to you, but helpful for me.”
Staff
Kip Beardsley, CEO
Nuha Ansari, Development & Administration
Martha Wilkie, Outreach & Social Media