Moving glioblastoma from terminal to treatable, powered by patients
OurBrainBank is an innovative, patient-led movement designed to move glioblastoma from terminal to treatable, powered by patients.
Our pilot study used a free app that patients or carers used to track symptoms, share data with clinicians, and donate data to medical research. Stay tuned for our next steps in 2021.
Our founder, Jessica Morris (1963-2021), lived more than five years after her 2016 glioblastoma diagnosis. Read her story
OurBrainBank is a completely new approach to cracking cancer. We focus on one of the most complex and aggressive brain cancers — glioblastoma — because overcoming one of the toughest cancers may be the key to cracking them all.
OurBrainBank is designed by, for, and with people with glioblastoma.
We aim to use cutting-edge technology to enable people to manage their disease, while turning their data into medical currency aimed at accelerating progress.
WHO
Community
OurBrainBank is a powerful community of people affected by GBM supporting each other through video calls, a Facebook group, newsletter, Instagram, Twitter, and a YouTube channel. We’re growing all the time, please join us.
Medical Advisors
OurBrainBank started in the US and our medical advisors include top neuro-oncologists, neurosurgeons, academics, and other experts in glioblastoma from Columbia University, Dana-Farber Cancer Institute, the NIH, Memorial Sloan Kettering, NYU Langone Health, Northwell Health, and more. Full list of advisors.
OurBrainBank UK Board
Jessica Morris
Founder (1963-2021)
Jake Arnold-Foster
CEO
Jana Bennett (1955-2022)
Media Consultant
Richard Clemmow
TV and radio producer and journalist
Andy Coulson
Founder of strategic advisory firm Coulson Partners
Julia Hobsbawm
Writer & Editor, host of The Human and the Machine
Simon Matthews
Experienced communicator and CEO, co-founder, Cohere Partners
Leadership
Our board includes passionate professionals from the worlds of media, healthcare, tech, strategy, business, and communications — some living with GBM, all touched by the disease.
11,725 new cases of brain tumours are diagnosed every year in the United Kingdom
GBM is the most common high grade cancerous primary brain tumour found in adults in the United Kingdom
Glioblastoma is the fastest growing form of brain tumour and extremely difficult to treat
5% of patients survive more than five years
“When I use the app, I’m managing the disease, not the other way around. I need better treatments now.”
— Jessica Morris, Founder of OurBrainBank
1963-2021
“We’re pleased to launch OurBrainBank in the UK. The app is simple and intuitive and I’m excited to be able to collect and analyse this important data.”
— Dr Florien Boele, Leeds Institute of Medical Research at St James’s
“The key to tackling GBM lies in research. This app could have a real impact on our ability to extend lives.”
— Fabio Iwamoto, MD, Deputy Head of Neuro-Oncology at Columbia University
WHAT
Two strategic interrelated programmes:
OBB Explore: researchers use patient data & methodology.
OBB Engage: patient-centered advocacy
MEDIA
Media around the world has covered OurBrainBank’s groundbreaking work including the Evening Standard, the Daily Mail, The Guardian, and more.
GIVE
OurBrainBank launched in the UK in 2019. If you can support us in any way and help us realise our aims, please donate via UK PayPal, JustGiving, or mail a cheque to:
OurBrainBank UK
12 Beverley Road
London W4 2LP
©OurBrainBank UK 2019. Registered Charity: 1184699. The OBB study is UK University Ethics approved. Principal Investigator: Dr Florien Boele, YCR Academic Fellow at the University of Leeds Institute of Medical Research and Leeds Institute of Health Sciences. OurBrainBank launched in the US in 2018.