Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
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YOU & GBM.
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.
Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.
Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.
Information for caregivers, including understanding the challenges and how to look after yourself.
YOU & GBM.
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.
Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.
Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.
Information for caregivers, including understanding the challenges and how to look after yourself.
CREATE CHANGE.
Read about our GBM Bill of Rights and advocacy campaigns to improve treatment and care of people with GBM. Create change with us
- GBM is the most aggressive and fatal type of brain tumor
- GBM does not get the attention it deserves
- Only 5% research proposals accepted
- Cracking GBM could help crack other cancers
- Turning GBM from terminal to treatable, powered by patients
In 2017, OurBrainBank’s founder Jessica Morris attended the launch of the Biden Cancer Initiative, in honor of Beau Biden who died of GBM.
CREATE CHANGE.
Read about our GBM Bill of Rights and OBB advocacy campaigns to improve treatment and care of people with GBM. Create change with us
- GBM is the most aggressive and fatal type of brain tumor
- GBM does not get the attention it so obviously deserves
- Only 5% research proposals accepted
- Cracking GBM could help crack other cancers
- Turning GBM from terminal to treatable, powered by patients
In 2017, OurBrainBank’s founder Jessica Morris attended the launch of the Biden Cancer Initiative, in honor of Beau Biden who died of GBM.
We don’t think that treatment for GBM is good enough.
We believe that the key to future personalized GBM treatments – and longer, quality life expectancy – lies in the genomic sequencing of patients’ tumors. We will strive for EVERY GBM patient to be offered the chance to have samples of their tumor taken and sent for sequencing.
LATEST NEWS.
OurBrainBank: 2025 in photos & videos
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
A Harvard Medical School student’s view: OBB at the Soc. for Neuro-Oncology conference
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
Press release: 66% OF GLIOBLASTOMA PATIENTS NEVER OFFERED A CLINICAL TRIAL: Disparities in Glioblastoma Care Expose Systemic Failures
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
Help us spread the word about disparities in GBM care in the USA — Demand More!
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
LATEST NEWS.
Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
OurBrainBank: 2025 in photos & videos
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
A Harvard Medical School student’s view: OBB at the Soc. for Neuro-Oncology conference
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
Press release: 66% OF GLIOBLASTOMA PATIENTS NEVER OFFERED A CLINICAL TRIAL: Disparities in Glioblastoma Care Expose Systemic Failures
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
Help us spread the word about disparities in GBM care in the USA — Demand More!
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
