Our GBM Story: Margaret and Glenn
Margaret writes about her and her husband Glenn’s glioblastoma experience, including becoming activists for better treatment.
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OurStoryBank — showcases the diverse stories of our community.
Whether you want to share your own personal experience living with GBM, caring for someone, or if you lost a loved to this deadly disease, we are a listening ear, and a megaphone to our supportive community.
Glioblastoma is a terrible disease and affects each person differently. Sharing your experience with diagnosis, treatments, logistics, and emotions may help others facing the same journey. We will package your submission into posts for our social media. To join the project, please use this form to send us a photo and a short (200 words) text with the name and life dates (as appropriate).
Here is an example with our founder, Jessica Morris.
Australian professor Richard Scolyer documents his glioblastoma journey
Prof. Richard Scolyer is an Australian pathologist who’s bravely sharing his GBM journey
GBM Stories: Patrick Koske-McBride
Patrick writes with intelligence and dark humor about what’s like living with GBM.
Adam Hayden, long-term GBM survivor
Long-term GBM survivor Adam Hayden’s hot take on living with a brain tumor.
Laura Nuttall (1999-2023)
Diagnosed at age 18 during a routine eye exam, Laura inspired the world with her bravery and spirit. She and her family raised an incredible amount of awareness about GBM.
Kyle Humphries – GBM survivor
Kyle Humphries, who lives in New York City, is a GBM survivor who has been through surgery, a clinical trial and integrative medicines.
Debbie Coulson’s story
Debbie (Debs) Coulson, 58, from Colchester was diagnosed with glioblastoma in 2017.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.
OurStoryBank: Georgie Maynard, living with glioblastoma
Over the last year we’ve entered this unexpected brain cancer world after discovering a glioblastoma (GBM) brain cancer tumour, grade 4, and consequently limited life expectancy.
New York Times Op-ed by Board Member Sundas Hashmi
My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too.
I was told it didn’t run in families. Was it just chance?
2020 New York Times Op-ed by Jessica Morris and Jana Bennett
We Are Living With Brain Cancer. Here’s How Biden Could Help Us.
Like Beau Biden, we have glioblastoma. It doesn’t get the attention it should.
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