CREATE CHANGE

Glioblastoma is an aggressive, unforgiving illness. Join us in demanding a new approach.

Glioblastoma is too often put in the ‘too difficult’ box. Survival rates have remained virtually the same for decades. We need more research, more urgency and more attention NOW.

13,000

PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR

5%

FIVE-YEAR SURVIVAL RATE

JUST

5%

OF RESEARCH FUNDING APPLICATIONS SUCCEED

13,000

PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR

5%

FIVE-YEAR SURVIVAL RATE

JUST

5%

OF RESEARCH FUNDING APPLICATIONS SUCCEED

#UseYourBrains!

In 2023, we launched our #UseYourBrains! campaign in the UK. Our whitepaper highlights 5 steps to improve GBM treatment in the UK and ensure patients benefit from the personalised cancer treatment revolution, including calls for universal genomic sequencing, reliable patient information and prioritising funding for research. Find out more.

GBM BILL OF RIGHTS.

The GBM Bill of Rights was developed by patients and ourselves, alongside our families and advocates.

GENOMIC TESTING.

Scientific advances like genomic testing and personalised medicine offer a way forward for people with GBM.

GBM DATA PROJECTS.

People with GBM are often left out of discussions about their own health journey. Our mission is to change this.

GBM BILL OF RIGHTS.

The GBM Bill of Rights was developed by patients and ourselves, alongside our families and advocates.

GENOMIC TESTING.

Scientific advances like genomic testing and personalised medicine offer a way forward for people with GBM.

MY DATA.

People with GBM are often left out of discussions about their own health journey. Our mission is to change this.

ADVOCATING FOR GBM

GBM receives too little attention and resources. A big part of what OurBrainBank does involves patient advocacy and raising awareness for GBM.

Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.

Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.

Couple looking for help facing GBM OurBrainBank for Glioblastoma

TARGETED CAMPAIGNS

OBB plans to focus on each one of the points flagged up in the GBM Bill of Rights and push for its fulfillment. We will not rest until we see improvements in each of the 11 rights.

Glioblastoma is an aggressive, unforgiving illness. Join us in demanding a new approach.

13,000

PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR

5%

FIVE-YEAR SURVIVAL RATE

5%

OF RESEARCH FUNDING APPLICATIONS SUCCEED

13,000

PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR

5%

FIVE-YEAR SURVIVAL RATE

5%

OF RESEARCH FUNDING APPLICATIONS SUCCEED

GBM BILL OF RIGHTS.

GENOMIC TESTING.

GBM DATA PROJECTS.

GBM BILL OF RIGHTS.

GENOMIC TESTING.

MY DATA.

GBM receives too little attention and resources. A big part of what OurBrainBank does involves patient advocacy and raising awareness for GBM.

GBM BILL OF RIGHTS

SUPPORT US

GBM BILL OF RIGHTS

SUPPORT US

OBB plans to focus on each one of the points flagged up in the GBM Bill of Rights and push for its fulfillment. We will not rest until we see improvements in each of the 11 rights.

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