Help us spread the word about disparities in GBM care in the USA — Demand More!
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
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Glioblastoma is too often put in the ‘too difficult’ box. Survival rates have remained virtually the same for decades. We need more research, more urgency and more attention NOW.
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
ADVOCATING FOR GBM
GBM receives too little attention and resources. A big part of what OurBrainBank does involves patient advocacy and raising awareness for GBM.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
TARGETED CAMPAIGNS
OBB plans to focus on each one of the points flagged up in the GBM Bill of Rights and push for its fulfillment. We will not rest until we see improvements in each of the 11 rights.
LATEST NEWS.
“I Have Terminal Cancer. This Is How I Broke the News to My Children”
OurBrainBank board member Sundas Hashmi writes in the Wall Street Journal about how she found a way to talk to her children about her brain cancer.
Glioblastoma Awareness Day: July 16, 2025
Glioblastoma Awareness Day: Help us spread the word about GBM.
Sponsor OurBrainBank Ex. Dir. as she hikes in Telluride!
Support OurBrainBank Executive Director Kelli Duprey as she hikes with her dog Wrigley to raise funds for OurBrainBank for Glioblastoma! Kelli will be hiking in the stunning mountains for Telluride, Colorado to raise funds and awareness about glioblastoma, the deadliest form for brain cancer.
Rod Nordland, famed journalist who wrote about his glioblastoma, has died
Rod Nordland wrote about his experience with glioblastoma in his book “Waiting for the Monsoon.”
LATEST NEWS.
Help us spread the word about disparities in GBM care in the USA — Demand More!
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
“I Have Terminal Cancer. This Is How I Broke the News to My Children”
OurBrainBank board member Sundas Hashmi writes in the Wall Street Journal about how she found a way to talk to her children about her brain cancer.
Glioblastoma Awareness Day: July 16, 2025
Glioblastoma Awareness Day: Help us spread the word about GBM.
Sponsor OurBrainBank Ex. Dir. as she hikes in Telluride!
Support OurBrainBank Executive Director Kelli Duprey as she hikes with her dog Wrigley to raise funds for OurBrainBank for Glioblastoma! Kelli will be hiking in the stunning mountains for Telluride, Colorado to raise funds and awareness about glioblastoma, the deadliest form for brain cancer.
Rod Nordland, famed journalist who wrote about his glioblastoma, has died
Rod Nordland wrote about his experience with glioblastoma in his book “Waiting for the Monsoon.”
