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Glioblastoma is too often put in the ‘too difficult’ box. Survival rates have remained virtually the same for decades. We need more research, more urgency and more attention NOW.
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
ADVOCATING FOR GBM
GBM receives too little attention and resources. A big part of what OurBrainBank does involves patient advocacy and raising awareness for GBM.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
TARGETED CAMPAIGNS
OBB plans to focus on each one of the points flagged up in the GBM Bill of Rights and push for its fulfillment. We will not rest until we see improvements in each of the 11 rights.
LATEST NEWS.
Help us with a new survey on GBM treatment disparities for people in rural areas
We want to reach patients missing from the data, so we’re expanding our national disparities research to reach rural and underserved families often left out of the picture.
Live Zoom chat with Jason Binder: GBM & AI
Jason Binder is a father of five and healthcare entrepreneur whose wife, Tracy, died of glioblastoma in 2025. During her illness, he built an AI tool…
OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
LATEST NEWS.
Employer matching gifts?
Ask your employer if they match charitable gifts, many do. Here’s the info you’ll need.
Help us with a new survey on GBM treatment disparities for people in rural areas
We want to reach patients missing from the data, so we’re expanding our national disparities research to reach rural and underserved families often left out of the picture.
Live Zoom chat with Jason Binder: GBM & AI
Jason Binder is a father of five and healthcare entrepreneur whose wife, Tracy, died of glioblastoma in 2025. During her illness, he built an AI tool…
OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
