OurBrainBank Pilot Study 2028-2021
In 2018, OurBrainBank launched its pilot glioblastoma study using a free smartphone app that patients or care partners used to track health indicators, play neurological games, and more. The success of the pilot study demonstrated that people living with GBM would contribute health data to a central database using mobile technology.
– 2018: Fabio Iwamoto, MD et al presented a poster about the pilot study at the Society for Neuro-Oncology conference
– 2019: OurBrainBank published “The Potential of Patient Power”
– 2021: “Pilot study of smartphone-based health outcome tracking (OurBrainBank) for glioblastoma patients” published in the journal Neuro-Oncology Practice
In 2021, OurBrainBank closed the pilot study and will develop OurBrainBank 2.0 using new technologies to continue to harness the power of patients — both by collecting data and helping people day-to-day. Our goal: accelerate research for tomorrow and improve the outcomes and quality of life of people living with GBM.
We are now poised to expand to full scale implementation — sustaining and expanding OBB partnerships with academics, researchers, clinicians, and people living with GBM to gather patient reported outcomes that will not only empower patients to manage their disease, but will accelerate research and advocacy.
We thank everyone who helped make our pilot study a success and look forward to new and exciting developments.