Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OurBrainBank board member Sundas Hashmi writes in the Wall Street Journal about how she found a way to talk to her children about her brain cancer.
Glioblastoma Awareness Day: Help us spread the word about GBM.
Support OurBrainBank Executive Director Kelli Duprey as she hikes with her dog Wrigley to raise funds for OurBrainBank for Glioblastoma! Kelli will be hiking in the stunning mountains for Telluride, Colorado to raise funds and awareness about glioblastoma, the deadliest form for brain cancer.
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
