From our friends at The International Brain Tumour Alliance: the Brain Tumour Patients’ Charter of Rights. OurBrainBank was one of the organizations who contributed to this important document and we strongly support it.
“The Brain Tumour Patients’ Charter of Rights is intended to address brain tumour inequalities across countries. It is also meant to stimulate debate and discussion. We hope that the Charter goals are shared by us all whether we are healthcare professionals, patients, caregivers or advocates.
The Charter can provide everyone with an aspirational framework for improving healthcare systems and communications – goals which we hope will help reduce inequalities from country to country and support better outcomes.
The Charter is an organic, partly aspirational document, intended to evolve as progress is made. It is meant to be a positive tool that can be used by all sectors of the international brain tumour community. It is a living document and will be reviewed annually.
The Charter is not solely a project of the IBTA but an effort on behalf of many patient advocacy organisations in the international brain tumour community who have contributed to its development. The Charter has been created through a collaborative and iterative process.”