We’re a patient-led movement dedicated to moving glioblastoma from terminal to treatable. We’re on a mission to support, inform and empower every person who has GBM. We’re the only GBM-focused non-profit conducting patient/carer-led data collection and research in the US and the UK.
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
We don’t think that treatment for GBM is good enough.
We believe that the key to future personalized GBM treatments – and longer, quality life expectancy – lies in the genomic sequencing of patients’ tumors. We will strive for EVERY GBM patient to be offered the chance to have samples of their tumor taken and sent for sequencing.
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
We need your help in developing OurBrainBank into an even more powerful resource. Please help us pave the way for more patient data-led research into GBM.
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