Rod Nordland, famed journalist who wrote about his glioblastoma, has died
Rod Nordland wrote about his experience with glioblastoma in his book “Waiting for the Monsoon.”
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YOU & GBM.
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.
Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.
Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.
Information for caregivers, including understanding the challenges and how to look after yourself.
YOU & GBM.
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.
Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.
Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.
Information for caregivers, including understanding the challenges and how to look after yourself.
CREATE CHANGE.
Read about our GBM Bill of Rights and OBB advocacy campaigns to improve treatment and care of people with GBM. Create change with us
- GBM is the most aggressive and fatal type of brain tumor
- GBM does not get the attention it so obviously deserves
- Only 5% research proposals accepted
- Cracking GBM could help crack other cancers
- Turning GBM from terminal to treatable, powered by patients
In June 2017 OurBrainBank’s founder Jessica Morris attended the New York launch of the Biden Cancer Initiative, the philanthropic scheme set up by Joe and Jill Biden in honour of Joe’s son Beau who had died of GBM. She talked about OBB’s mission to move GBM from terminal to treatable, powered by patients. “We need a sense of urgency!” she told him.
CREATE CHANGE.
Read about our GBM Bill of Rights and OBB advocacy campaigns to improve treatment and care of people with GBM. Create change with us
- GBM is the most aggressive and fatal type of brain tumor
- GBM does not get the attention it so obviously deserves
- Only 5% research proposals accepted
- Cracking GBM could help crack other cancers
- Turning GBM from terminal to treatable, powered by patients
In June 2017 OurBrainBank’s founder Jessica Morris attended the New York launch of the Biden Cancer Initiative, the philanthropic scheme set up by Joe and Jill Biden in honour of Joe’s son Beau who had died of GBM. She talked about OBB’s mission to move GBM from terminal to treatable, powered by patients. “We need a sense of urgency!” she told him.
We don’t think that treatment for GBM is good enough.
We believe that the key to future personalised GBM treatments – and longer, quality life expectancy – lies in the genomic sequencing of patients’ tumors. We will strive for EVERY GBM patient to be offered the chance to have samples of their tumor taken and sent for sequencing.
LATEST NEWS.
ASCO 2025: OBB presenting at world’s largest oncology conference
OurBrainBank is at ASCO2025 presenting a poster on inequities in glioblastoma treatment. Visit our booth and say hello to Executive Director Kelli Duprey.
Brain Tumour Treatment outside the NHS
OurBrainBank, in collaboration with a team from Imperial College London, is conducting innovative research to better understand the experience of adult brain tumour patients from the UK, some of whom may be accessing treatment outside of the standard care that is offered by the NHS.
May is Brain Tumor Awareness Month
MAY is Brain Tumor Awareness Month: give, share, raise awareness about glioblastoma
Join us on June 5, 2025 for a celebration of ALL IN MY HEAD, by Jessica Morris, Brooklyn
Join us on June 5, 2025 in Brooklyn to celebrate Jessica Morris’s memoir of living with glioblastoma ALL IN MY HEAD. Readings and conversation with a GBM care partner and a top neuro-oncologist from Columbia University.
LATEST NEWS.
Rod Nordland, famed journalist who wrote about his glioblastoma, has died
Rod Nordland wrote about his experience with glioblastoma in his book “Waiting for the Monsoon.”
ASCO 2025: OBB presenting at world’s largest oncology conference
OurBrainBank is at ASCO2025 presenting a poster on inequities in glioblastoma treatment. Visit our booth and say hello to Executive Director Kelli Duprey.
Brain Tumour Treatment outside the NHS
OurBrainBank, in collaboration with a team from Imperial College London, is conducting innovative research to better understand the experience of adult brain tumour patients from the UK, some of whom may be accessing treatment outside of the standard care that is offered by the NHS.
May is Brain Tumor Awareness Month
MAY is Brain Tumor Awareness Month: give, share, raise awareness about glioblastoma
Join us on June 5, 2025 for a celebration of ALL IN MY HEAD, by Jessica Morris, Brooklyn
Join us on June 5, 2025 in Brooklyn to celebrate Jessica Morris’s memoir of living with glioblastoma ALL IN MY HEAD. Readings and conversation with a GBM care partner and a top neuro-oncologist from Columbia University.
