My GBM story: Meredith, a long-term survivor

My GBM story: Meredith, a long-term survivor

My GBM Story: Meredith, a long-term survivor  I was diagnosed 6/1/2005 with a 7 cm anomaly. I had my first craniotomy on 6/15/2005 in Atlanta and received the pathology of GBM IV. Slides were sent to four different hospitals and we got varying results from a high AA...
Our GBM story: Margaret & Glen

Our GBM story: Margaret & Glen

Our GBM Story: Margaret & Glen  I am a caregiver for my husband Glenn von Nostitz, who was diagnosed with wild-type and MGMT negative GBM in January 2016. Glenn had a long career in New York State and City government that unfortunately coincided with 9/11. His...
GBM Bill of Rights

GBM Bill of Rights

  Glioblastoma Bill of Rights: A new patient-centered call to action Glioblastoma is an aggressive, deadly brain tumor that currently has no cure. People living with GBM deserve quality care and the ability to make informed decisions. Now is the time for a GBM...

Take a survey on mindfulness & brain tumors

Take a survey from Columbia Medical School  From our friends at the Columbia University Irving Medical Center: We would like your input on a mediation-based intervention that could reduce stress and improve quality of life. The survey’s purpose is to learn more...
My GBM story: Deb D.

My GBM story: Deb D.

My GBM Story: Deb D.  Life coach Deb D.’s first direct experience with glioblastoma came on Sept. 14, 2009, when her ex-husband first exhibited symptoms of GBM with elements of PNET – a childhood tumor that is rare in adults.  Her second experience came to her...
OurBrainBank Advocacy Partners

OurBrainBank Advocacy Partners

Advocacy Partners OurBrainBank is proud to partner with other GBM and brain cancer nonprofits. If your nonprofit or charity is involved with GBM, please contact us. OurBrainBank is grateful for the support of its Advocacy Partners, however this does not imply that...