Glioblastoma clinical trial matching & support services
Below is a list of services — some web-based, other via phone or email — that can help you: find a clinical trial or center of excellence, get a second opinion, navigate insurance and disability benefits, and more.
Most neuro-oncologists recommend people with GBM consider a clinical trial. Some services are only for people in the US (or willing to travel), but there are international options.
Brain Tumor Network Phone or email consultation includes clinical trial matching. “BTN’s services are free for patients and healthcare providers; the information you receive from BTN will be personalized to tumor type, medical history, and personal needs.”
National Brain Tumor Society “The NBTS Clinical Trial Finder is intended to help raise awareness and increase participation in clinical trials to facilitate brain tumor research and accelerate the development of new drugs and treatments for patients.”
Al Musella Foundation/Cancer Commons “Xcelsior: a patient centric platform trial for precision oncology… a research study but with a huge twist: YOU make the final decision on which treatments to do. Our team of nurse navigators, research scientists, internal review board of domain experts and external virtual tumor board of some of the top brain tumor doctors evaluates your case and suggests the best plan options for your individual case… We learn from every patient so the system gets better over time.”
End Brain Cancer “We provide patients and caregivers the educational materials and questions to ask of their doctors to make sure they are being seen by a top specialist as well as what to demand from their neuro-surgeon, pathologist, radiologist and neuro-oncologist/Oncologist in order to be eligible for advanced treatments, clinical trials, DNA sequencing, genomic profiling, MGMT testing as well as protein testing. All this data supports research but with top specialists, this data helps the specialist identify the treatment option that the patient is most likely to respond to = Personalized Medicine based on the molecular profile of the tumor + makes Immunotherapy, Vaccines and other clinical trials available to P/C.” Requests $175 donation (can be waived)
EmergingMed “We provide services for patients that raise awareness and facilitate access to clinical trials. These patient-focused services are part of the broader solution EmergingMed hosts for clinical trial sponsors and investigators to overcome barriers in the “last mile” of enrolling patients in clinical trials.”
Belong.Life’s “Clinical trials matching technologies can find any trial on earth that might be relevant to your condition.”
NAVIFY Clinical Trial Match allows you to search the largest international trial registries, including ClinicalTrials.gov, European Medicines Agency and Japan Medical Association Center for Clinical Trials.
TrialJectory “TrialJectory is a patient-first digital health company with a mission to democratize access to advanced cancer treatment through clinical trials. Recognized by TIME as one of “The 100 Best Inventions of 2020,” TrialJectory uses artificial intelligence (AI) to empower patients to own their cancer journey and analyzes its global patient community’s real-world data to empower cancer patients to make the most informed decisions about their care.” Free for patients/caregivers
ClinicalTrials.gov — Not a matching service, but a search engine of thousands of trials around the world. It can be difficult to navigate, but all the information is there. Anyone can use this, not just US citizens.
Clinical Trials in India — Search engine of all trials in India. You want to make sure they are “recruiting” and “interventional” (although “observational” GBM trials are helpful for research in general).